Monday, May 12, 2014

Who is Fandom4LLS?

Who is Fandom4LLS?

Fandom4LLS is a small group of readers who help raise money for the Leukemia and Lymphoma Society. This will be the 4th year that Fandom4LLS has raised money. With your help and the help of the fandoms we have raised over $10,000 in the last 3 years!! That's truly amazing and we couldn't have done it without you!

This year we are going to continue with three fandoms, Twilight, Hunger Games, and Harry Potter.

How Can You Help?

There are many ways that you can help Fandom4LLS.

The first thing you can do is donate just $10 using the link on the sidebar or going here. We are now accepting donations! All donations are due August 31st.

Last year the compilations combined were over 3,500 pages! Each fandom had 750 or more pages of reading material!!

If you would like to be part of the Fandom4LLS team by creating banners for authors, or helping to beta you can fill out this form.

If you are an author and would like to contribute a written piece, please fill out this form. All written submissions are due August 15th, that gives you plenty of time to write a piece.

If you have any questions check out our FAQ page or send us an email. We are always open to comments and suggestions as well.

We can't wait to have another successful year, but WE NEED YOUR HELP!

Don't forget to check back often for author updates and teasers.

Tuesday, July 2, 2013

Fire with Fire: We Want to Cure Cancer (short video)

Who would dare to pit one fatal disease against another… inside the body of a six-year-old patient? The results will shatter all expectations.

This is a short film on how some doctors are trying to find a cure for cancer using a whole new method.

You can support The Leukemia & Lymphoma Society find a cure for cancer.
Donate here! 

Monday, June 24, 2013

In Honor of Camila

Camila de la Llata:

Today I was saddened to find out the news that a young woman, only 23 years old passed away on June 9th from Acute Myeloid Leukemia.

I first met Camila when I worked at a summer camp in college. She was just finishing her Freshman year of High School and was full of life and energy. Despite the age gap between us there was something about Camila that made you want to be her friend. It was great getting to know her that summer and watch her perform in the camp play.

I never really spoke with Camila again after that summer, but we were Facebook friends and would keep in touch with each others lives.

Last fall, Camila was diagnosed with Acute Myeloid Leukemia. At this point I was already committed to The Leukemia and Lymphoma Society. Finding out this news just continue to fuel my passion and I signed up to complete my first triathlon in her honor. I sent Camila an email telling her I was thinking about her and tried to help promote her cause.

Camila desperately needed a bone marrow transplant. Due to her bi-racial background and not having any siblings should could not find one. She continued to do chemotherapy in hopes of finding a match.

This morning I was saddened to find this article posted by her parents. Camila had a beautiful spirit and despite how briefly she was part of my life, she still made an impact.


If there is one thing to take away from Camila's story it is to live life to it's fullest because you never know when things may change.

Thousands of patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases depend on the Be The Match Registry® to find a match to save their life.

Patients need donors who are a genetic match. Even with a registry of millions, many patients cannot find a match. Donors with diverse racial or ethnic backgrounds are especially needed.


You can find out more about the National Bone Marrow Registry and Be the Match here.

Monday, May 20, 2013

Who is LLS?

Who is The Leukemia & Lymphoma Society and why should you donate?


WHO:  

The Leukemia & Lymphoma Society (LLS) is the world’s largest voluntary health organization dedicated to funding blood cancer research and providing education and patient services. Founded in 1949, we are relentless in pursuit of our mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families.

WHAT:

Investing in blood cancer research: LLS has invested more than $750 million in research, approximately $72 million in fiscal year 2010 alone. Programs like the Specialized Center of Research (SCOR), which brings together teams of scientists from different disciplines and our Translational Research Program, which funds research with a high probability of producing innovative patient treatments in an accelerated time frame, have directly contributed to many breakthrough cancer treatments.

Research funded by LLS has led or contributed to advances such as chemotherapy, bone marrow and stem cell transplantation and new, targeted oral therapies such as Gleevec®, Rituxan®, Velcade®, Thalidomid®, Revlimid®, Dacogen® and Vidaza®. Providing critical information and support for patients and their families:

We made 4.7 million contacts with patients, caregivers and healthcare professionals in fiscal year 2010, through our Information Resource Center (IRC), our award winning Web site and community-based patient service programs. We put people together with experts through Web-casts and teleconferences, and provided professional education through seminars, to extend the latest findings to a broader professional audience. Advocating for issues impacting blood cancer patients: With more than 50,000 advocacy volunteers throughout the country, our voice is being heard by those responsible for legislation to fund blood cancer research and educational programs.

WHY:
 

The need is critical: An estimated 957,902 people in the United States are living with, or are in remission from, leukemia, Hodgkin lymphoma, non-Hodgkin lymphoma or myeloma. Every four minutes, someone new is diagnosed with blood cancer. Every 10 minutes, someone dies.

Leukemia causes more deaths than any other cancer among children under the age of 20. Lymphomas are the most common blood cancers and incidence increases with age. The survival rate for myeloma is only 38.5 percent. Incidence is nearly twice as high among African Americans as for all other races.

HOW:
 

As a nonprofit, we rely on the generosity of individuals, corporations and foundations. Seventy-five percent of our total expenses support cancer research, education, advocacy and patient services. Major, annual fundraising campaigns include Team In Training®, Light The Night® Walk, School & Youth ProgramsSM, Man & Woman of the Year and The Leukemia Cup Regatta.

WHERE: 

 In addition to our national headquarters in White Plains, NY, we have a network of 59 local chapters across the United States and Canada. Information on blood cancers and support is available at www.LLS.org.

Tuesday, May 7, 2013

Someday is Today

Someday is Today







Take a moment...donate to The Leukemia & Lymphoma Society. Every little bit counts.

$10 is the cost of sending two newly diagnosed patients information about their disease and how to get support.
$25 covers a single prescription co-payment.
$35 pays for transportation expenses for a patient living in Northern California's most rural areas to treatment at a comprehensive cancer center.
$40 is the cost of sending a comprehensive packet of information for children with cancer.
$75 is the average cost of tissue typing to become a bone marrow donor.
$100 provides 3 patients access to an information teleconference.
$150 allows 5 patients to make a First Connection with a trained peer volunteer.

$200 provides a Family Support Group Program for one year for a patient and their family.
$500 allows 10 patients to log on to a webcast and hear the latest information in treatment for their disease.

$550 is the cost of a CT scan.
$1000 supports one week's salary for a medical researcher at UCSF, Stanford, or Berkeley who may discover key information to developing curative treatments for blood cancers.

Monday, January 28, 2013

Real Life Hero News

Hello everyone!

    I know it has been a long time since we last updated, but I found out today that one of the Real Life Heroes spotlighted on our page was recently told that her Leukemia has returned.

Sylvia was one of the first stories we told on our Real Life Heroes page. She is taking this news head on and started an aggressive course of treatment today.  She is mostly concerned about her three daughters, who have gone through this with her before three years ago.  Sylvia has been an active part of TNT and LLS by being an advocate for patients, collecting hats and scarves, an Honoree, and a great friend to many.  Now she needs our support. She will be inpatient at the hospital with the same treatment as last time, Chemo injected 24hrs for a week, then she will remain in the hospital for a month.

I ask that you please keep her in your thoughts and prayers over the next few weeks. She is a beautiful person inside and out.

After finding out that another person close to me was diagnosed with a rare form of Leukemia over the summer and is unable to find a bone marrow match I decided to sign up for another season with Team In Training (TNT). This time I will be competing in my first triathlon. My season was in honor of Camilia and Gina, and I will now be adding Sylvia to the people I pray for and admire. There is a link at the bottom of this page as well as a widget on the side if you would like to help the cause.

Thank you to all of you for your generosity,

ZiggyND

You can donate to The Leukemia and Lymphoma Society here.

Sunday, July 15, 2012

How Does LLS Help Other Diseases?


Did you know that your donation not only helps people with Leukemia, Lymphoma, and other multiple myeloma but also benefits other diseases? Read this article below to find out more information.

The Leukemia & Lymphoma Society funds over 400 research grantees who are pursuing the causes and cures for leukemia, lymphoma and multiple myeloma. In the course of this research, these scientists study various aspects of the normal and diseased immune system, the molecular causes of blood-related cancers and various treatment regimens and therapeutic agents. All of these research pursuits have significant impact on the treatment and cure of other diseases, including breast cancer, prostate cancer and other solid tumors, AIDS, autoimmune diseases and various other blood disorders such as sickle cell anemia and thalassemia.

Let's look at several examples of this "cross-functional" research. Treatment of breast cancer has directly benefited from Society funding of bone marrow/stem cell transplant research. New, intensive chemotherapeutic treatment of breast cancer with autologous bone marrow transplant is a currently investigated treatment option for women with advanced breast cancer. The Society has and is currently funding important research into stem cell and bone marrow transplantation. (Current committed funding impacting breast cancer research is $17.9 million.)

AIDS patients have likewise benefited from research funded by the Society. For patients with AIDS comes an increased risk (>80 times) of AIDS-associated lymphoma. Because highly active anti-retroviral therapies (HAART) reduces this risk, we have also funded research into opportunistic infections and into understanding and treating Kaposi’s sarcoma, an HIV-related cancer. This may prevent or limit HIV growth and reduce the risk of AIDS-associated lymphoma. (Current committed funding impacting AIDS research is $3.7 million.)

A recent "cross over" therapy involves the new, molecularly-targeted leukemia pill called GleevecTM. Gleevec is an orally administered drug that inhibits certain enzymes that are mutated and drive the growth of chronic myelogenous leukemia cells. The Society has funded and continues to fund Dr. Brian Druker's work into this new therapeutic agent. A related enzyme is altered in gastrointestinal stromal tumor (GIST). Gleevec is a powerful new tool in the treatment of GIST with long term remission occurring in 70% of patients, including those with distant metastatic tumors. (Current committed for research on GleevecTM is $11.6 million.)

Of course, The Leukemia & Lymphoma Society funds research into the basic cellular mechanisms of growth regulation. Many genes that are mutated or altered in the evolution of various cancers are the same. These altered genes are called oncogenes (if they help stimulate growth) or tumor suppressor genes (if they promote the normal limitation of cellular growth). Obviously, research that sheds light on how these altered genes disrupt cellular growth regulation is important for the development of new therapies for all types of cancers harboring these mutated genes.


We thought this was fascinating information and helps to show that your donation is going beyond just specific cancer research. Let us know what you think by commenting below?

 Have you donated yet?


**Prepared by Alan J. Kinniburgh, Ph.D., Vice President of Research, The Leukemia & Lymphoma Society, 21 April 2004 For information on Society-funded research in specific areas, visit www.lls.org, click on “Research” then “Grants in Force” and do a search for your area of interest.**